I first came to grips with my fibromyalgia diagnosis two weeks ago, I was sitting in my principal’s office, crying because I was having a bad day. The boys were particularly difficult this day, and ever adult in the building was getting on my last nerve. Now, I work with a small faculty, so we are like a little family; but even family has their limits. I snapped at almost everyone on my floor before lunch, and that was when I knew that I needed to take a day to myself. My first, actual, sick day.
I went to my principal during my prep period, and explained to her what happened. What I said, what I did, and that I needed to take the next day off. Thankfully, she understood–her sister has fibro, so at this point I was happy for the sympathy. As I was telling her that I was struggling with my illness, I started crying. I felt so overwhelmed and helpless. Like the world was crumbling around me, and I finally admitted to myself and someone else that I do, in fact, have a chronic illness, and there are going to be times that I am going to need a break.
Prior my illness, I could not sit still. I was always working, I was always doing something, teaching, volunteering at church, helping my family whenever the needed. Always making time to do things for other people, but making little time for myself. Before I got a full-time job, I was a substitute teacher. I bounced from job to job worrying about where my next paycheck was going to come from. I did a daily subbing gig for a while, until I finally landed my first long time sub job. It was only supposed to be from December until March, but somehow God was looking down on me and I stayed until June (This story is for another post). The first two years out of college were the years that I had never worked so hard in my life. I was tired, I was miserable, I was poor, and I didn’t feel safe in what I was doing. I had no security.
Stress. Stress. Stress. These two summers were all about stress. From not having a stable paycheck, to helping my grandmother with her cancer diagnosis, eventually dealing with her death, and trying to find my way in the world. I didn’t know where I was going.
Finally, I was hired for my first full time position–a position I have now held for three years. It has its ups and downs, but the job itself and teaching the kids that I do, makes me so proud and so happy.
In my second year at my job, around this time my family and I noticed that my father wasn’t feeling well. We wrote it off as a sinus infection, at first, but as the days went on we realized it was much more serious. My father was suffering from a stroke–and for some reason, he kept having these strokes despite what the doctors could do.
I held a lot of pain in during this time; I felt that I needed to be there for my mother and my brothers. Someone had to be able to get things done, and my mother needed her time to grieve and I wanted to help her. This is something that is just automatic for me; when I sense someone needs help, needs someone to think for them, or help them work through a hard time I just go on autopilot. Part of me is still dealing with my father’s death every single day, and it never gets easier.
Stress. Stress. Stress. When I was in college, two of the most stressful things in my life were pledging a sorority and being president of my sorority my senior year. I cried, yelled, bottled up, and usually drank my stress away. Which, albeit is not healthy at all, but I just always kept things inside until I hit a breaking point and I can’t take it any longer. Some of these things, sadly, I have carried with me as an adult. The stress that I have experienced in the past three years, makes my college years look like child’s play.
When my doctor asked me if I have experienced a lot of stress in my life, I laughed. It was defense mechanism, way easier to make something a joke than dealing with your feelings. Wait for the post about being Irish Catholic for more of an explanation. I know I have experienced with stress, but at that time–I didn’t need to deal with it. I compartmentalize it. I bring it out when I need to deal with it, or when it’s relevant at a certain place and time. Or, honestly, when I have had one too many glasses of wine, and literally cannot stop talking. Also, wait for the Irish Catholic post.
Stress was just something that I dealt with, when I wanted to deal with it. Which is probably why I am bad about going to a therapist. I thought that it would help me, but I don’t think that I am in the right place in my life for it. I’m certainly not denying that it cannot help, or that it could have some benefit; I just don’t think I am ready yet. Or that I will ever be ready.
But, I have learned that this stress has been doing terrible things to my body–which has manifested itself as fibro. And. I will tell you…it sucks. This is the most annoying chronic illness. My body is in pain constantly (shifts from place to place some days), anything can set it off, I am tired ALL THE TIME, it’s wiped out most of my desire to workout, muscle spasms at night are annoying, sleeping is terrible, walking, standing, sitting is uncomfortable. There are so many things that I can be annoyed at with this illness, and it took a long time for me to even accept the fact that I had an illness. But, I do. And I am still here. Fighting.
So, this is my journey with this annoying illness. This is my journey with my faith, feeding my soul, and learning how to take care of myself.